ABOUT
Carpe Seizen'
A podcast about living with Epilepsy as a Young Adult, Jordan brings in a variety of guests from the epilepsy community. A casual place to listen, learn and connect.
New to Epilepsy? Navigating Insurance, Doctors, and Other Advocacy with Erika Fleck
In this episode, we sit down with Erika, the founder of the Epilpesy Advocacy Network and secret comedian. We discuss her journey with epilepsy as a mom and creating what she so badly needed when she was first diagnosed— the Epilepsy Advocacy Network. Through candid discussion we learn how Erika came to the decision to have brain surgery, how she handled epilepsy and being a mom, and how she came to founding EAN. The Epilepsy Advocacy Network provides those diagnosed with epilepsy many resources, such as: HOBSCOTCH, PACES, Peer support, and even help navigating insurance and finding the right doctor. We hope you enjoy this converation with Erika!
How Epilepsy Saved My Life
In this episode, Jessie opens up about her journey from being misdiagnosed with anxiety to finally discovering she had epilepsy—and how an MRI for her seizures revealed something even more shocking: a brain tumor. Jessie shares how persistence, self-advocacy, and support from others helped her navigate this life-changing diagnosis and find the right treatment. Through an honest and inspiring conversation, we explore the intersection of mental health, epilepsy, and the power of community to build resilience. Don’t miss this compelling story about finding strength in the face of medical challenges.
A Mother-Daughter Talk on Growing Up with Epilepsy
In this episode, we reverse the roles and sit down with podcast host Jordan and her mom, Mary, as a guest host. Jordan shares her journey living with epilepsy, from moving out at 17 to earning a master’s degree at 23. Reflecting on their early experiences, they discuss the uncertainties they faced when symptoms first appeared and the moments of clarity that emerged along the way.
They explore what they felt they got “right” during Jordan’s childhood and the resources they wish had been available. Drawing from their experiences with YAWE, they talk about the invaluable support the organization provides and the upcoming projects such as parental support groups and expanded resources.
Embracing Epilepsy Through Golf and Art
In this episode, we sit down with Kenzie O'Connell, a golfer and advocate as she shares her journey with epilepsy. We discuss the transformative moment of acceptance, detailing how she shifted from feeling blamed for her seizures to embracing her condition with confidence. Through candid reflections, we delve into the therapeutic power of sharing personal experiences with epilepsy and how this has fostered a sense of community and understanding.
Kenzie also highlights how golf has served as a platform for advocacy, reshaping her relationship with her diagnosis and empowering them to inspire others. Join us for a heartfelt discussion celebrating resilience, advocacy, and the transformative power of sport and art.
A Journey of Service, Epilepsy, and Advocacy
Join us as Jenna shares her journey with epilepsy, revealing how it has shaped her passion for advocacy and service. Discover how she's turned her challenges into opportunities for helping others, and get motivated by her innovative projects and outreach efforts. Whether you’re living with epilepsy, passionate about service, or simply looking for inspiration, this episode offers a powerful message of resilience, empowerment, and the impact of giving back.
From Brain Surgery to Novelist
Join us today as we chat with McKenzie, a student and writer living with epilepsy. She shares her powerful journey of undergoing brain surgery to manage her condition, navigating life through homeschooling, and finding inspiration through independently travelling through Europe. McKenzie is now writing a novel that beautifully explores the challenges and joys of loving someone with epilepsy. Tune in to hear her story of courage, creativity, and the impact she hopes to make through her writing. Follow McKenzie on instagram @kenziebenzee
Epilepsy, Dating, and Men's Mental Health with an Invisible Disability
Today we are joined by Austin, a brand ambassador for Young Adults with Epilepsy, to talk about the unique struggles around being a man with epilepsy.
Epilepsy, College, and Josh Hutcherson
Today we join Abby, a young adult living with epilepsy and learn about the unique struggles of college, extra curricular sports, and meeting celebrities with epilepsy.
Raising a Son with Epilepsy and Launching YAWE
Today we are joined by Wendy Steel, the Executive Director of Young Adults with Epilepsy, and also a mother to a young adult with epilepsy to discuss starting a non profit, and the specific challenges persons with epilepsy face when entering adulthood.