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Epilepsy Support Programs

The transition from pediatric to adult care is a significant milestone for young adults with epilepsy. This period comes with unique challenges, such as maintaining regular medical care, avoiding medication lapses, and having a seizure response plan. Studies, like one published in JAMA, highlight that a poorly managed transition can increase risks such as missed appointments, medication shortages, and unexpected seizures.

To support YAWE through these transitions, our programs focus on fostering independence, mental well-being, and quality care access. Here's an overview of our services

Peer Counseling Program

Our 12-week program, led by a Licensed Marriage and Family Therapist (LMFT) and peer counselor, is designed to:

Blend Psychosocial Education: Educating participants about the emotional and mental challenges of epilepsy.
Support Problem-Solving & Goal Setting: Helping YAWE identify challenges and set realistic, meaningful goals.
Behavioral Modeling & Reinforcement: Equipping participants with practical coping strategies through group interaction.

Format: Small group settings of 6–10 participants allow for personalized attention and mutual support.
Focus: Enhancing both mental health and epilepsy-related outcomes.

Please visit our Peer Counceling page for more information

Monthly Workshops

We host monthly workshops designed to address critical topics for YAWE. These workshops are interactive, informative, and empowering.

Previous Workshop Topics Include:

Reclaiming Autonomy: Strategies to take back control over your life.
Navigating Highs and Lows: Tools for managing the emotional rollercoaster of epilepsy.
Mastering Self-Care: Practical tips for maintaining a healthy and independent lifestyle.

Please visit our events page to find upcoming workshops

A Long View

Program Timeline: Our inaugural group counseling program is set to launch in the third quarter of the year, with a thorough evaluation to follow in the fourth quarter. This will allow us to reflect on our impact, learn from our experiences, and continually improve our services.

Evaluation Metrics:

Depression Symptomatology: Assessment of changes in symptoms of depression among our community members.
Quality of Life Metrics: Evaluation of improvements in the quality of life of our members, taking into consideration various factors like independence, social engagement, and overall well-being.
Seizure Activity Monitoring: Regular tracking and measurement of seizure activity among our members to evaluate the effectiveness of interventions.
Negative Health Events Tracking: Monitoring and evaluation of adverse health events such as seizures, emergency room visits, and hospitalizations.
Community and Medical Services Utilization: Analysis of the extent to which our community members utilize available community and medical services, as a measure of our success in connecting them with necessary resources.
Client Satisfaction Survey: Implementation and analysis of client satisfaction surveys to gauge the effectiveness and impact of our programs and services.
Counseling Effectiveness (AESMMI-65): Utilization of the AESMMI-65 tool to measure the effectiveness and impact of our counseling services.
Program Participation and Reach: Assessment of the extent of participation in our programs and the reach of our services within the target demographic.
Event Participation and Reach: Evaluation of attendance and engagement levels in our events to measure their success and impact on the community.