ABOUT
Programs
"The change from pediatric to adult care is a major transition for patients with epilepsy. There's concern that if a patient can't make this transition well, they are at a higher risk of not seeing doctors in a timely fashion, running out of medications or having unexpected seizures without a plan to respond safely."
JAMA
Peer Counseling
Psychosocial Counseling (free)
12 week program, led by a LMFT & peer counselor will blend psychosocial education, problem identification/goal-setting and behavioral modeling & reinforcement in a group format (6-10 YAWE) to improve epilepsy and mental health outcomes.
​
​
Please visit our Peer Counceling page for more information
Monthly Workshops
Monthly workshops covering topics important to YAWE
​
Previous topics include
- Reclaiming Autonomy and Control Over Your Life
- Navigating Highs and Lows of Epilepsy
- Mastering Self Care as a Young Adult with Epilepsy
​
Please visit our events page to find upcoming workshops
A Long View
Program Timeline: Our inaugural group counseling program is set to launch in the third quarter of the year, with a thorough evaluation to follow in the fourth quarter. This will allow us to reflect on our impact, learn from our experiences, and continually improve our services.
​
Evaluation Metrics:
​
-
Depression Symptomatology: Assessment of changes in symptoms of depression among our community members.
-
Quality of Life Metrics: Evaluation of improvements in the quality of life of our members, taking into consideration various factors like independence, social engagement, and overall well-being.
-
Seizure Activity Monitoring: Regular tracking and measurement of seizure activity among our members to evaluate the effectiveness of interventions.
-
Negative Health Events Tracking: Monitoring and evaluation of adverse health events such as seizures, emergency room visits, and hospitalizations.
-
Community and Medical Services Utilization: Analysis of the extent to which our community members utilize available community and medical services, as a measure of our success in connecting them with necessary resources.
-
Client Satisfaction Survey: Implementation and analysis of client satisfaction surveys to gauge the effectiveness and impact of our programs and services.
-
Counseling Effectiveness (AESMMI-65): Utilization of the AESMMI-65 tool to measure the effectiveness and impact of our counseling services.
-
Program Participation and Reach: Assessment of the extent of participation in our programs and the reach of our services within the target demographic.
-
Event Participation and Reach: Evaluation of attendance and engagement levels in our events to measure their success and impact on the community.
​